Tag Archives: ALS Society of Manitoba

Bulbs ‘Lite Up a Life’ at ALS House

By Sarah Klein

Students from Vincent Massey Collegiate in front of the Brummitt-Feasby ALS House. (HANDOUT)

The trees outside the Brummitt-Feasby ALS House will be decked-out Wednesday night as the official lighting ceremony takes place.

Grade 12 students from Vincent Massey Collegiate helped decorate and string the lights on the tree this year, part of the annual Lite Up A Life event. Each bulb on the tree is made possible by a donation, which helps fund research going toward fighting ALS, or Lou Gehrig’s disease.

Bulb donations can be made by calling (204) 831-1510 Ext. 4. Three bulbs are $5, or five bulbs for $10.

The lighting ceremony will begin at 7 p.m. at 106 Kirby Drive.


Annual ALS Society Golf Tourney Seeking Foursomes

By Brian Schultz

The ALS Society of Manitoba’s Drive for Life Golf Classic is taking place on Thursday and there’s still time to register.

The 8th annual tournament has room for two more foursomes to play along at the Bel Acres Golf and Country Club. The day will be in honour of Marcel Bertrand.

Registration is $200 and includes lunch, 18 holes of golf, a power cart, registration gift, buffet dinner and a bucket of warm up balls. There’s also the chance to win a great selection of prizes. A $100 tax receipt will be be provided. Lunch begins at 11:30 a.m., with the Texas scramble at 12:30 p.m.

Proceeds from the tournament will go support the ALS Society of Manitoba.

To register, contact Sharon Carter at (204) 831-1510 or by e-mailing HOPE@alsmb.ca.

Brothers Portaging Across Canada in Winnipeg Today

Frank and Jeff Kitching with their 42 canoe in PEI. The brothers will be in Winnipeg Friday as part of their cross-Canada effort to fundraise for ALS societies across the country. (FACEBOOK)

Two brothers who are portaging from St. John’s to Victoria will be in Winnipeg this morning as part of their fundraising efforts to support ALS societies across Canada.

Frank and Jeff Kitching are carrying the 14-foot canoe cross-country in memory of their father, Wayne, who passed away from ALS in 2008.

“I know what you’re wondering,” Frank said in a statement. “What in the world could make them do this? And why a canoe? The answer — it’s something our father would have loved to hear about, and would have loved to do. We are doing this for Dad. As for the canoe, well, it’s quintessentially Canadian and the challenge of portaging Canada would have made Dad laugh. His spirit of adventure will be with us as we portage this great nation.”

The brothers will land at the ALS Society of Manitoba’s office, 493 Madison Street, at 9 a.m. to speak with clients and anyone else who would like to support their cause.

“Maybe we will meet families with a member suffering from ALS, maybe we’ll meet people at campgrounds with stories of their own to share, we know we will meet as strangers, we hope we will part as friends,” Frank added.

They are also looking for rides from destination to destination, which will take them to Meadowlark Campground in Brandon next.

You can track their adventure on Twitter by following @42Canoe, on their Facebook page or website at 42Canoe.ca.

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ALS Walk Planned for Saturday in Falcon Lake

By Sarah Klein

Advocates for finding a cure to ALS, also known as Lou Gehrig’s disease, will come together on Saturday for the Falcon Lake Walk for ALS.

The 2.5 kilometre walk will begin in Whiteshell Provincial Park on the Trans-Canada Trail at 11 a.m. Registration is at 10:30 a.m.

Proceeds from the event help researchers to find a cure for ALS, and also helps to provide support services to families affected by the disease through the ALS Society of Manitoba.

To register or for more information, call Marlene Pontifex at (204) 222-5561 or (204) 349-2738.

Following the walk, participants can enjoy the 9th Annual Whiteshell Music Festival.

Men on Cross-Country ALS Bike Tour in Winnipeg Today

Two men on a cross-country cycling journey in support of ALS research will be passing through Winnipeg today.

Joel Bisson and Michael Downey have been riding their bikes across Canada since beginning on June 1 on Vancouver Island.

The ride was inspired by Bisson’s own experience of taking care of a close friend of the family, known as “Uncle Vic,” who is afflicted with the disease.

“Three years ago my Uncle Vic was diagnosed with ALS and needed a homecare worker, and I was offered the position,” Bisson said. “I was expecting a very depressed man but instead I found a man dedicated to living,” said Bisson. “However weak Uncle Vic’s physical condition, he was emotionally and spiritually stronger than all the physically healthy people I knew. The same Uncle Vic that used to lift me into my crib now lifts me in a whole new way. Ironically, it sometimes takes a dying man to teach you how to truly live.”

Bisson’s desire to make a difference in the lives of those affected by ALS along with his love of cycling inspired the 100 Day Bike Tour for ALS.

The two will be at the ALS Society of Manitoba offices at 493 Madison Street for a community celebration at 1 p.m.

Their final destination is St. John’s, Newfoundland.

You can follow their journey at als100daybiketour.blogspot.com.

ALS Society Seeking Client Services Coordinator

By Brian Schultz

The ALS Society of Manitoba is seeking a registered nurse with clinical experience and knowledge to work with neuromuscular diseases.

The Client Services Coordinator will be responsible for ensuring the effective and efficient delivery of programs and services to ALS/MND clients across Manitoba and for the management of the Brummitt-Feasby ALS House.

Anyone interested in applying can send their resume to :
Executive Director, ALS Society of Manitoba
493 Madison Street
Winnipeg, MB R3J 1J2
Email: HOPE@alsmb.ca
Fax: 204-837-9023

The successful candidate will also need to have supervisory experience and knowledge of palliative care and home care policies and procedures.

Volunteers Needed for ALS Walks Throughout the Province

Volunteer coordinators are needed for ALS walks in rural Manitoba.

The ALS Society of Manitoba is looking for dedicated and organized individuals wishing to donate time to manage a 5K walk in their area.

Anyone interested in helping out can call 1-866-718-1642, fax their resume to (204) 837-9023 or e-mail hope@alsmb.ca.

Money raised from the walks will go towards ALS research, providing support for people and their families living with Lou Gehrig’s disease.

Tents Needed for ALS Walk on June 4

Three large free-standing tents are needed for the Winnipeg Walk for ALS on June 4.

The ALS Society of Manitoba is holding the annual fundraiser at Assiniboine Park.

Anyone who can help the society attain the tents is asked to call (204) 837-1270 or e-mail bcampbell@alsmb.ca.